<div><div><div dir="auto">Wow Ellen - thank you for sending this. It’s realky wonderful to hear from you too - happy Chanukah. I’m interested in helping out even from a far - I’m in no shape to donate but I’d be happy to spread word, if you can give me a bit more detail on how to do that. </div></div></div><div dir="auto"><br></div><div dir="auto">It’s also strange timing because I never thought I’d be saying this, but things have become very difficult with this surgically caused Fistula I’ve been managing since 2012, and now we’re at the point where I have to actually look into multivisceral organ transplants. Part of this includes intestines, which is still relatively new transplant-wise.</div><div dir="auto">Anyway, not entirely sure why I’m writing to you about this, but I take everything as a sign! I also know very little about the world of transplants and I’d like to connect more with that community. I’d love to help out with this if there’s a way I can. Also, if you have any suggestions for me, please do let me know! It’d be great to chat on the phone if you ever had time!</div><div dir="auto"><br></div><div dir="auto">Best,</div><div dir="auto"><br></div><div dir="auto">Amy Oestreicher</div><div dir="auto">2032094948.</div><div><div><br><div class="gmail_quote"><div dir="ltr">On Thu, Dec 6, 2018 at 12:22 PM ellen bernstein <<a href="mailto:ellen.bernstein@comcast.net" target="_blank">ellen.bernstein@comcast.net</a>> wrote:<br></div><blockquote class="gmail_quote" style="margin:0 0 0 .8ex;border-left:1px #ccc solid;padding-left:1ex"><div style="word-wrap:break-word;line-break:after-white-space"><font face="Lucida Grande, Verdana, Arial, Helvetica, sans-serif"><span style="background-color:rgb(255,255,255)">Dear JSUniks,</span></font><br style="font-family:"Lucida Grande",Verdana,Arial,Helvetica,sans-serif"><span style="background-color:rgb(255,255,255)"><font face="Lucida Grande, Verdana, Arial, Helvetica, sans-serif"> A fabulous Jewish Hampshire alum needs your help to help her daughter who is suffering from a rare genetic disease. The full message from alum Rachel Gratz-Lazarus is posted below. Rachel is hoping one or more of you can help start a registration drive (next semester) at Hampshire--to register as many students as possible (particularly those of Ashkenazi Jewish descent) </font><b style="font-family:"Lucida Grande",Verdana,Arial,Helvetica,sans-serif"> to become bone marrow donors </b><font face="Lucida Grande, Verdana, Arial, Helvetica, sans-serif">(just take a cheek swab). If you have any interest in helping out, </font></span><span style="font-family:"Lucida Grande",Verdana,Arial,Helvetica,sans-serif;background-color:rgb(255,255,255)">Professor Laura Week would love to work with you.</span><div><span style="background-color:rgb(255,255,255)"><br style="font-family:"Lucida Grande",Verdana,Arial,Helvetica,sans-serif"></span><span style="background-color:rgb(255,255,255)"><font face="Lucida Grande, Verdana, Arial, Helvetica, sans-serif">Actually being a donor--if one is a match—is a more involved process—yet one that could save a life. </font></span></div><div><span style="background-color:rgb(255,255,255)"><font face="Lucida Grande, Verdana, Arial, Helvetica, sans-serif"><br></font></span></div><div><span style="background-color:rgb(255,255,255)"><font face="Lucida Grande, Verdana, Arial, Helvetica, sans-serif">Please read Rachel’s full note posted below so you can get the whole story.</font></span></div><div><font face="Lucida Grande, Verdana, Arial, Helvetica, sans-serif"><span style="background-color:rgb(255,255,255)"><br></span></font><div><span style="font-family:"Lucida Grande",Verdana,Arial,Helvetica,sans-serif;background-color:rgb(255,255,255)">This site discusses what is entailed in the drive</span><br style="font-family:"Lucida Grande",Verdana,Arial,Helvetica,sans-serif"><br style="font-family:"Lucida Grande",Verdana,Arial,Helvetica,sans-serif"><a class="m_-7736864985889505113m_7727194320943136578moz-txt-link-freetext" href="https://www.norahneedsyou.com/donate?fbclid=IwAR09ElmlHuD0kORIEpr16njSjAat48cB9FRLmnWtruWHSTzIrG4liuTJGF4" style="font-family:"Lucida Grande",Verdana,Arial,Helvetica,sans-serif" target="_blank">https://www.norahneedsyou.com/donate?fbclid=IwAR09ElmlHuD0kORIEpr16njSjAat48cB9FRLmnWtruWHSTzIrG4liuTJGF4</a><br style="font-family:"Lucida Grande",Verdana,Arial,Helvetica,sans-serif"><br style="font-family:"Lucida Grande",Verdana,Arial,Helvetica,sans-serif"><font face="Lucida Grande, Verdana, Arial, Helvetica, sans-serif"><span style="background-color:rgb(255,255,255)">Please be in touch with me if you have any interest in this.</span></font></div><div><span style="background-color:rgb(255,255,255)"><br></span></div><div><span style="background-color:rgb(255,255,255)">With gratitude,</span></div><div><span style="background-color:rgb(255,255,255)">Ellen<br></span><br style="font-family:"Lucida Grande",Verdana,Arial,Helvetica,sans-serif"><br style="font-family:"Lucida Grande",Verdana,Arial,Helvetica,sans-serif"><br style="font-family:"Lucida Grande",Verdana,Arial,Helvetica,sans-serif"><img alt="" src="cid:16784943fffcc9749b71" style="width:437px;max-width:100%"><p style="font-family:"Lucida Grande",Verdana,Arial,Helvetica,sans-serif;margin:1em 0px;font-size:12.000000953674316px">Ok friends, this is really hard, but here goes: </p><p style="font-family:"Lucida Grande",Verdana,Arial,Helvetica,sans-serif;margin:1em 0px 0px;font-size:12.000000953674316px">Last month our 4-year old daughter Norah was diagnosed with a rare genetic disease called Fanconi Anemia (FA). <span class="m_-7736864985889505113m_7727194320943136578text_exposed_show" style="display:inline;font-family:inherit">FA, in essence, interferes with the body's ability to properly repair its DNA, and increases sensitivity to radiation. This puts Norah at high risk for a variety of cancers -- the greatest risk in the coming years being leukemia. If untreated, 90% of FA patients develop leukemia and/or bone marrow failure. Currently, the only known treatment to prevent leukemia is a bone marrow transplant.</span></p><div class="m_-7736864985889505113m_7727194320943136578text_exposed_show" style="font-family:"Lucida Grande",Verdana,Arial,Helvetica,sans-serif;display:inline;font-size:12.000000953674316px"><p style="margin:1em 0px;font-family:inherit">We are grateful that Norah is currently healthy. She is the same bouncy, imaginative and head-strong little lady she has always been. However, Norah's doctors are preparing us for the need to do a bone marrow transplant in the next few years. Should her situation worsen, she will be in immediate need of a bone marrow donor with an exact match in order to make sure that the procedure is successful.</p><p style="margin:1em 0px;font-family:inherit">While finding an exact bone marrow match is difficult, the likelihood of a match increases substantially among ancestral lines, and for Norah this means we are looking primarily for a donor with Jewish Ashkenazi (Eastern European) ancestry.</p><p style="margin:1em 0px;font-family:inherit">However, we are also determined to increase the pool of potential bone marrow donors in the registry for all those in need of a transplant (a lack of diverse donors, and mixed-race donors in particular, contributes to health inequities).</p><p style="margin:1em 0px;font-family:inherit">Zach and I are launching a campaign to recruit 10,000 people between the ages of 18-44 to join the national bone marrow donor registry to help save our daughter's life and others in need of a transplant. We have created the website <a href="http://www.norahneedsyou.com/?fbclid=IwAR16LwLhFXlF-qNyj-Y6zlZGHIEr9Jl2cFJQzSE_LHo5M96ouAYHMtjwdpc" style="color:rgb(54,88,153);text-decoration:none;font-family:inherit" target="_blank">www.NorahNeedsYou.com</a> to share more and offer options for how to help. Please visit and share!</p><p style="margin:1em 0px;font-family:inherit">How can you help? </p><p style="margin:1em 0px;font-family:inherit">1. Register here if you are between 18-44: <a href="https://join.bethematch.org/SwabforNorah?fbclid=IwAR1mBJgkKLLcJVwYPLf1hQKnsmXCixO1_dPSdH0Jmm3zylr8RW-Nwg3NFpU" style="color:rgb(54,88,153);text-decoration:none;font-family:inherit" target="_blank">http://join.bethematch.org/SwabforNorah</a>. Registering is an easy process that involves completing a quick 6-minute online form and doing a simple painless cheek swab a few days later when the swab kit arrives at your home. If a person is found to be a match, and willing/able to donate, the donor procedure is very low-risk (contrary to common perceptions) and the benefits are literally life-saving.</p><p style="margin:1em 0px;font-family:inherit">2. Like & Share the Norah Needs You FB Page: <a href="https://www.facebook.com/NorahNeedsYou" style="color:rgb(54,88,153);text-decoration:none;font-family:inherit" target="_blank">www.facebook.com/NorahNeedsYou</a>and encourage others to register</p><p style="margin:1em 0px;font-family:inherit">3. Email your network and encourage at least 10 people in your community to register (sample email on website: <a href="https://www.norahneedsyou.com/sample-email?fbclid=IwAR1BBDsDv9hhOsLxRVb_AtKAoj2nBlHxPmPBGYwFTe_i2kdbXegxaODf9Ec" style="color:rgb(54,88,153);text-decoration:none;font-family:inherit" target="_blank">https://www.norahneedsyou.com/sample-email</a>)</p><p style="margin:1em 0px;font-family:inherit">4. Host a drive (visit our website to learn how: <a href="https://www.norahneedsyou.com/donate?fbclid=IwAR09ElmlHuD0kORIEpr16njSjAat48cB9FRLmnWtruWHSTzIrG4liuTJGF4" style="color:rgb(54,88,153);text-decoration:none;font-family:inherit" target="_blank">https://www.norahneedsyou.com/donate</a> )</p><p style="margin:1em 0px;font-family:inherit">5. Donate to the Fanconi Anemia Research Fund to help find a cure: <a href="https://fundraise.fanconi.org/give/160689/?fbclid=IwAR3iAz_gSAQ1s4f9_6OYJFGcZvAhNC2pnuMCgRnhs0OZahG9hVpo6hcYy4Y#!/donation/checkout" style="color:rgb(54,88,153);text-decoration:none;font-family:inherit" target="_blank">https://fundraise.fanconi.org/give/160689/…</a></p><p style="margin:1em 0px;font-family:inherit">We love Norah with all of our hearts. She’s our tap dancer. Our joke teller. Our goofy bookworm. And, as you can imagine, we are holding a lot right now. We are heartbroken, we are scared. We are also hopeful and determined to make this okay. We are grateful for your love and support of our family - it means the world to us.<span class="m_-7736864985889505113m_7727194320943136578Apple-converted-space"> </span><br></p></div><pre class="m_-7736864985889505113m_7727194320943136578moz-signature" style="font-family:"Lucida Grande",Verdana,Arial,Helvetica,sans-serif;margin-top:0px;margin-bottom:0px;padding:0px;word-wrap:break-word;white-space:pre-wrap!important">____________________________________</pre><div><br></div></div></div></div>_______________________________________________<br>
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</div>-- <br><div dir="ltr" class="gmail_signature" data-smartmail="gmail_signature"><div dir="ltr"><div><div dir="ltr"><div><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><p align="center" style="text-align:center;background:white"><span style="font-family:"Georgia",serif;color:#4c1130;background:#cfe2f3"><i>Amy Oestreicher</i></span></p><p align="center" style="text-align:center;background:white"><span style="font-family:"Georgia",serif;color:#4c1130;background:#cfe2f3"><i> <a href="http://www.amyoes.com/" target="_blank"><span style="color:blue">www.amyoes.com</span></a></i></span><span style="font-family:"Arial",sans-serif;color:#222222"></span></p><p align="center" style="text-align:center;background:white"><font size="1"><i><span style="font-family:Georgia,serif;color:rgb(76,17,48);background:white">Actress,
Artist, Playwright, Author</span></i></font></p><p align="center" style="text-align:center;background:white"><font color="#4c1130" face="Cambria Math, serif"><span style="font-size:10px"><b><i>*Celebrating Life's Beautiful Detours Through the Arts"</i></b></span></font></p><div style="text-align:center"><font color="#4c1130" face="georgia, serif" size="1"><span style="font-style:italic;vertical-align:baseline;white-space:pre-wrap"><br></span></font></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div>